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First experience with a person with a disability

What was your first experience with a person with a disability? Is there any advice you could give to others from your experience?

Kristy Delong

I have an aunty that’s mentally retarded.  She can’t talk she’s kind of in her own world she knows how to tell people what she wants by sign language.  She has been at a home since she was 4.  I’ve only been around her a couple of times and that’s what I noticed.

Viola Longie

I have a good friend who is in a wheelchair.  She likes to do things by herself.  But when she needs help I love to help her when she asks me, because I don’t want her to think she is helpless and make her feel weird to ask me for help.  So I let her do things that she can do.

My experience with a mentally retarded person was with my boyfriend’s cousin.  He has a mind of a five year old and he is 36 years old.  I treat him really good.  Every time he sees me he tells me hi.  At first I was scared of him, but now he is really fun to be around.  I enjoy him coming by just to say hi.  He is a fun person.

My first most memorable experience with teaching a child with disabilities is my partnership with a 12 year old autistic girl and her mother.  This setting was a latch key environment and we were available to families from 3:00 pm until 6pm and full time summer hours.  The year was 1977.  This young lady was mainstreamed into our child care facility.  The mother was at wits end because there was no other care available for her.  At the time, she was accepted into our program.  I had the philosophy that the other children would better develop empathy and become better citizens.  I truly believe we all had the best of worlds and if any of our families had bias, it never surfaced.

I worked in a 4th grade classroom at Turtle Mountain Elementary School.  I was a parent aide.  I got to spend some time with a boy with a disability.  He liked to play on the computer, so I would let him play for about 15 minutes, before he had to go to his special ed class.  Then also at lunchtime, I would sit with him.  He would listen to me really good.  We got to be really close. 

I had a son that was born with a disability called pigeon breast.  It was a deformity from birth.  It was a sunken in area in the chest area.  There were Type A, B, and C.  He was diagnosed with Type B.  He was 7 years old at the time and could have had corrective surgery, but the process that my child would have had to go through was unbearable.  The doctors would have to go into the chest area, crack the ribs on each side of the chest.  The child would then have to lay flat on his back for at least 5-6 months, no movement whatsoever.  Eventually, the healing would take place, but once the child gets older, he would have to repeat the surgery because of growth of the bones.  Luckily, he outgrew the problem and filled out very well in the chest area.

My first experience working with a child with disabilities is this year.  This child has PKU, we have to watch what he eats, he can’t have meats, poultry, eggs, nuts, milk, he is on milk substitute.  It is hard to remember what he can eat and what he can’t eat.  But we are managing this disability.

Feather B.

My son Weston is four years old and he was six months old when he was diagnosed with asthma.  He was having a hard time breathing.  And I took him to the hospital and they took his oxygen level now he gets admitted 2 to 3 times a year.

Susan

This year is my first experience is with a child that is Down Syndrome and uses sign language.  I said this myself Oh God how am I going to teach that.  I don’t know anything about sign language.

My first real experience besides working with students who have ADDHD. I had one student who was bi polar and I was actually afraid of him. First of all I didn't even know what bi polar was so I looked it up on the internet and educated myself. Then I didn't know what to expect or how he would be during the class period. Mostly anything would set him off, as a teacher I would try to keep him in the classroom as much as possible. Somedays he was good but there were times when I had to sent him out of the classroom because his behavior got out of hand.

My first most memorable experience with teaching a child with disabilities is my partnership with a 12 year old autistic girl and her mother.  This setting was a latch key environment and we were available to families from 3:00 pm until 6pm and full time summer hours.  The year was 1977.  This young lady was mainstreamed into our child care facility.  The mother was at wits end because there was no other care available for her.  At the time, she was accepted into our program.  I had the philosophy that the other children would better develop empathy and become better citizens.  I truly believe we all had the best of worlds and if any of our families had bias, it never surfaced.

I worked in a 4th grade classroom at Turtle Mountain Elementary School.  I was a parent aide.  I got to spend some time with a boy with a disability.  He liked to play on the computer, so I would let him play for about 15 minutes, before he had to go to his special ed class.  Then also at lunchtime, I would sit with him.  He would listen to me really good.  We got to be really close. 

More tribal members talk about their first experience with disability

 

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